Inclusion North, Learning Disability England, Difference North East and British Institute of Human Rights are working together to ask the Ministerial Oversight Group on Do Not Attempt Cardiopulmonary Resuscitation to involve people with lived experience in their work as equal members and to recognise the invaluable contribution they need to make to this work.
The Ministerial Oversight Group was set up to oversee the delivery of the Care Quality Commission’s recommendations on Do Not Attempt Cardiopulmonary Resuscitation decisions set out in their report ‘Protect, Respect, Connect – decisions about living and dying well during Covid-19’. This report showed poor involvement, poor record keeping and a lack of oversight and scrutiny, with decisions being made that were not individualised and not in line with people’s wishes or human rights. People with a learning disability, older people and people with dementia were particularly affected, and Black, Asian and Minority Ethnic people were less likely to know that a Do Not Resuscitate decision had existed for them.
We have co-produced a letter that we intend to send to the Ministerial Oversight Group – see below– and we are seeking your support to demonstrate that this is an issue that a large number of us have concerns about, to encourage the Group to listen and act.
If you wish to add your support, please reply to Melissa@inclusionnorth.org before 22nd October. We will then add your organisation’s name to the list of signatories.
Thank you in advance.